Blog

Its now just over 3 weeks since my operation and everything is going great.  All my test results are fine and my doctor said

Your an 8.5/10.  But no one ever gets a 9 becasue life isnt that good.

Still got the problem of not sleeping, couldnt sleep last night so worked on a website navigation till 2.30 untill I thought that was enough, but then woke up 4.30 and layed there listening to music.  My doctors say its a mixture of the drugs im taking.  Minor thing i have noticed is I am slightly shakey, again thats due to tablets.  These are really small issues I can live with seeing as I now have a functioning kidney.

Transkid site is doing well with 190 unique hits from 8 countries.  I have loads of great feedback from people – some are surprised at how open i am with everything others just thanking me for telling my story.

I have writen an article for kidskidneyresearch website, which they will be adding sometime soon.  This will help people understand how FSGS effected my life and how things could be for them.

I have been in contact with dragon skin in california about creating custom armor for me, this will enable me to still play hockey.  Last week I sent them a template of what i was after and they are currently putting it together for me.  If that fails McDavid have made me a padding tshirt, also I have booked an apointment with the NHS to make me something.  So hopefully I will be back to hockey in the new season…